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Swisss Misss
21 December 2007 @ 07:16 pm
from cymbalta and they're really bad its been two days and i should be getting more in the mail tomorrow but this is fucking insane... i hate it
 
 
mood: : crazy!!!!!!!!!!!!!!!!!!!!!!!11
 
 
Swisss Misss
20 December 2007 @ 10:44 am
Every year, the week before Christmas, I get a terrible chest cold / sinus infection that lasts forever. This year was no different than the previous two. I'm sitting here sick, nursing a partial root canal that was done yesterday, and trying to get some jewelry orders filled before Christmas and send off last minute gifts. I haven't mentioned it here year, but I've been selling some stuff on etsy lately. http://mcswiss.etsy.com mostly jewelry, and there's only one item up right now - but soon more.

After my last denial about a month ago, I contacted some lawyers. They were extremely rude, short fused and irate with me. Besides that, they had the same old doubtful attitude about Fibromyalgia & it's existence in me. He even said, "Lupus is one of those things you can't definitely diagnose." I was just shocked that someone who is supposed to be wanting my business, someone I'm supposed to be giving money to, was treating me like this. We scheduled an appointment to meet, but I canceled. When asked by his secretary if I wanted to reschedule I said, "Uh, definitely not."

I contacted another lawyer whose legal assistant told me to acquire my medical records from DSHS and all of my other and previous doctors. Unfortunately I don't have $50 to drop on each doctor whose records I need (would amount to at least $100 to get all my records immediatley - I just CAN'T afford that. there's no way.) BUT - I did get my records that DSHS had on file.

On top? A letter from my current specialist doctor in September stating very clearly "SHE WILL NEVER BE ABLE TO RETURN TO WORK."

So much validation just in one photocopy.

After all the bullshit I've been through with doctors and government agencies and lawyers.

I can't even express how much relief just that paper gave me. Just that sentence. I'm not crazy, I'm not lazy, I'm not anything that uneducated, self-absorbed people want to believe I am.

Happy Holidays everybody.

xo swiss
 
 
mood: : relievedrelieved
 
 
Swisss Misss
17 November 2007 @ 03:08 pm
it's a social bookmarking site for chicks. kinda like digg. i signed up, you should too.

i posted a fibromyalgia link and nobody has 'loved it' yet.:( we can get the word out. <3

swiss (thanks for all your comments!)
 
 
Swisss Misss
http://www.ei-resource.org/news/fibromyalgia-news/fibromyalgia-harder-to-cope-with-than-other-conditions/

Research says with a high level of certainty that Fibromyalgia sufferers find it more difficult to cope with their illness and the symptoms and effects than of other rheumatic illnesses. Among the studies Fibromyalgia sufferers' most common complaints are: worrying about whether their pain will end, anxiously wanting the pain to go away, unable to stand their pain.
 
 
Swisss Misss
15 November 2007 @ 12:14 am
where so much stupid bullshit has built up into this massive pile of anger, frustration, stress, and depression inside of me.

i got my denial from ssa again, i now have to appeal before a trial judge. i have to get a lawyer, yet all the lawyers i've contacted have all but told me to go fuck myself.
 
 
 
Swisss Misss
22 October 2007 @ 12:11 pm
Does anybody know how I would go about filing a medical discrimination complaint about certain doctors offices in the area?

Please help!

Thanks
 
 
Swisss Misss
17 October 2007 @ 02:23 pm
I haven't forgotten about my friends here at livejournal. I want you guys to know that I'm thinknig of you and appreciate all your comments, even though I can't return them very often. It's been a big struggle using the computer at all lately due to my photosensitivity.

I have a few more things that I want to address in my blog soon, and I want to focus not only on my illness but also on the other things I enjoy - comedy, music, art, crafts.

Thanks for being a listening ear. :)
 
 
listening to: : Salt N Pepa - Doper Than Dope
 
 
Swisss Misss
03 October 2007 @ 11:46 am
At least on one battlefront!

Department of Social & Health Services actually hooked me up with an amazing caseworker. She has Lupus & Fibro. also, and is working hard on my behalf to make it so I don't have to worry about things.

I also sent in my disability function report for myself and the one sean filled out for me, into my adjudicator. I wrote a lot, and tried to not forget anything. I'm really hoping they don't blow off my photosensitivity. I'm willing to go get tested for it. I'm actually willing to expose myself to the Ultraviolet so that they can see what it does to me.

I will update more in awhile, but I'm feeling nauseas!

Swiss
 
 
Swisss Misss
Where do you get inspiration for your arts and crafts?


My inspiration typically comes from a desire to practice and get better at whatever craft I am doing. I like to be interested in the project, like everyone does, so I often combine my project with another hobby I like. Like cross-stitching video-game characters, or making a shirt for my dog to be ridiculous in.
 
 
Swisss Misss
19 September 2007 @ 02:50 pm
You guys know how it is though, not feeling good = no motivation.

I'm going to try to make this post as summarized as possible, and if you have any questions or want me to clear anything up for you, just comment. :)

When I was 17 I was diagnosed with Evans Syndrome and started seeing a pediatric oncologist. It took three biopsies to figure out what I had, because it was that whole process of elimination thing. I saw him from 2002 until 2006, even though I was way past pediatrics. The reason I kept seeing him was because I was on horrible state medical and no rheumatologist on the planet would accept it. I had no choice. He insisted I call him when I was sick or had any problems, rather than going to a general practicioner, which you're apparently supposed to do.

Through those years that I saw the ped. onc. he was a really strange guy. My mom and I didn't like him. He made us wait in the waiting room for literally four or five hours every appointment, and for a long time we were going to appointments every week. When we did get to see him he would babble on endlessly about horses. His responses to things like yeast infections were, "That's a hygiene problem." (everybody knows yeast infections are common in people with low immune systems.), he made masked sexual remarks re: my boyfriend and I, he would prescribe me 20 pain pills at a time, saying I could take one every four hours. When I called back for a refill, he would yell at me or my mom and make me feel like a drug addict. We finally had to stop seeing him when he told me one day that I was going to need Cytoxan. I came back on the day of the appointment, and nobody had even set the appointment. Apparently now the doctor wasn't sure he wanted to do Cytoxan. So I spent upwards of a month preparing myself mentally for this challenge. I was absolutely terrified. His response by my angry reaction? To act like it was my fault. Not only that, but while I'm sitting there bawling, he says to my boyfriend and mom (right in front of me) "She must be really difficult to deal with when she's like this." I stormed off.

At the next appointment, I had figured out another doctor. My grandma convinced her rheumie (one of the best docs in america) to accept my insurance. Dr. 1 said he would send Dr. 2 my entire chart, meet with him, talk with him etc. Three months later when I arrived for my apt. with Dr. 2, Dr. 1 still hadn't sent the chart. The faxed half of it and gave up. It's the most pathetic excuse for a clinic on the planet. He mentally abused me for years and I allowed it because I didn't know any better, and now there isn't shit I can do about it. Don't let yourself get treated like this by a doctor.

Anyway, now I'm re-applying for disability and Dr. 2 can only describe my state for the last year, not for the last 6, and Dr. 1 is a jerk who won't respond to our calls.

Is that even legal?

Disability Redetermination called me today and are sending me another form to fill out. The guy I talked to was very nice, and said I could attach as many pages as I needed describing the state of my condition, in my eyes. He is also sending forms to my mom and Sean.

I may have a chance.. I.. May have a chance.
 
 
mood: : trying not to get my hopes up.
listening to: : tegan + sara