I hate lupus, I hate lupus, I hate lupus.

Please please please do not get systemic lupus.

please?

I think I posted a picture of what SLE does to my body once, the bruises, the cysts. Stupid lupus.

yeah, it rules. i actually do already have SLE.. i've started developing cysts on my lips, and my legs are just awful with bruises.. my back and chest as well. yech!!!

Hello, Are you saying you get rashes and bruises where the skin is covered?? I just had my first rash on my covered back, from the bra line to the pant line. Large and the next day it was encircled with a bruise. The new Rheumy said: "you must have fallen and not remember it". WTH. Who would not remember such an event. I had been out in the sun..
After 18 yrs with lupus, this was my first sun rash event. Strange. And bummed with having to find a new Rheumy... I even took a picture to him of the rash..

I wish there was a third picture where you looked like you used to. You'd be beautiful in all three, but I could see you completely healthy and free from any worry about your health.

How do you know what I used to look like? Hmm.. Secrets! Thank you for the compliment.

I have no photos of myself as an adult without being sick - that's never really happened.

I found your blog very interesting. It may be of the interest to you to check out other great site that talks about drug lawsuits.
post your complaints and reviews to get awareness about drugs.post your complaints regarding drugs and drug stores at www.drugscomplaints.com/

it feels so good looking at your picture...odd thing to say i know,but it was some sort of twisted-relief to find you while searching for info.
the thing is i have had that rashes, or i dont know how to name them yet, since i was 19 or so,now i'm 26 and things are getting worst about many things concerning my health overall.about the rash, i've never understood what it was,thought acne,but it didn't felt like it or look like it to me,until my current doctor told me something about a "butterfly mark" and after years of seeing doc's about this rashes and other stuff, she tells me i have an autoimmune disease...and i get all freaked about the term and i get to research on my own just to get more freaked ahahaha...
i always felt so misunderstood about this thing in my face,and actually took pics of myself when i was so disturbed about not knowing what it was and why it was so uncomfortable and annoying situation...
now, i'm confused of how to feel,how will i treat this...all sort of stuff and watching your photos and reading your words helped me calm down and try to see things differently and not feeling so alone and misunderstood...

Thanks for sharing!¡!i'll be cheking more of your articles i have the feeling it will be helpful ^...^

PD: sorry if i spelled words badly, i have rusty english ...


O...o
ixi

Thank you for the encouragement - something we all need. I'm sorry to hear about your health problems, maybe my new blog can help you better: http://xoswiss.blogspot/com

Best of luck. :)

Oops

http://xoswiss.blogspot.com

my name is Jenny and I suffered from all of your ailments also with rashes but I was severely bed ridden for almost 12 years of my life last year 12/08
I stopped all meds and today I suffer from not one thing at all <3

but I do have scars on my legs and arms also this was caused by meds fibromyalia is an emotional syndrome ``broken heart `` syndrome not a disease I would like you to contact me if youd like <3

I had every test imaginable leading to all of my diagnoses
I was told it was in my heart and my brain but what actually was in my brain were the thoughts of others not qualified in what stress chemicals and maybe sometimes sadness leads us to <3

FIBRO IS MORE THAN A EMOTIONAL SYNDROME. YOU HAVEN'T
DISCOVERED THE RIGHT DOCTOR YET! ALL OF THOSE IDIOT
DOCOTORS WHO USED TO SAY IT WAS IN OUR HEADS ARE NOW
FINDING OUT OTHERWISE. I HAVE HAD 2 DOCOTRS CALL AND
APOLOGIZE TO ME FOR TREATING ME THE WAY THEY DID.

it's a very sad thing to say but many dr's including the Mayo Clinic. will diagnose women that they don't know what to do w/ as fibro! leading to the bad rep as an emotional or fictional problem!! it's soo sad i know people who actually have fibro and people who've been misdiagnosed just because their dr didn't know what to do w/ them!! a complete disservice to both types of patient!! i was one fo the people that they tryed to push the false diag. on!! thank god i had great drs who said yes some of ur symptoms r similar but it's not fibro. i have over the last few years started developing the lupus rashes still going threw the whole diagnos process, lupus, RA, 2 older sisters that have been given diagnoses, of lupus and nonsyrum RA. interestingly enough i was ignored by drs because my chiro was the one that put the symptoms together and told me to get to dr immediatly!! u would think the fact that a chiro was saying get to the dr and go threw treatments we really don't approve of should have made tham more concerned!!

Huh... I want to download program X-Rumer 5.0 PALLADIUM for FREE. Have you any url???
I'm so need this magic program! It's can break captchas automatically! Activate accounts via email automatically too! Absolutely great software! Help me!
And did you hear news - price for XRumer 5.0 Palladium will grow up to $540 after 15 may 2009... And XRumer 2.9 and 3.0 - too old versions, it's cant break modern catpchas and cant break modern anti-bot protections. But XRumer 5.0 Palladium CAN!!!!
So help me for download this great soft for free! Thanks!

hi there thanks for your post.
Ive had lupus for about 8 years. I started getting this ?rash, more like isolated big acne pimples in odd spots. They are gross. I'm 45 and they are not like normal pimples. is that the rash you are talking about.
Or are you talking about the fine red rash on your cheeks? Is that lupus erythematosous?

cheers Andrea

I know what exactly you are going through. I have had lupus for 3 years now and it has been an absolute hell. I have the rash as well and sometimes swelling in my face. When I first flared my whole body got a rash,face blew up like a pumpkin. I am only 30 years old and have had blood clots, hip replacement,knee surgery, and is on about 10 pills a day. I sure wish that they could find a cure for this aggravating disease. I think there is one, but no one wants to market it cause then we would not need the doctor anymore. That is just my personal opinion. Good luck to all with the silly disease.

Ive just got those rashes on my face its a different one to the rest of my body its itchy as they gave me tablet and a steiroid cream im like u i hate the lupus thing all together is yours like this i swell up as well not suppose to be in the sunlight either any help be great im new at this

Hi, I was just wondering if your symptoms went in a cycle. For example, appear like raw red spots, then peel over, and then almost completely go way. Then start all over again. I had a biopsy done 2 weeks ago and still no results. My doctor said he is checking for everything. I of course dont want it to be skin cancer, but also no lupus. Were your sypmtoms the same? Thanks Michelle

I actually have been scared i have a huge red bump on my chin that is hard and just hurts then the peeling pimple like rash discussed here ....my doctors thought i had chlymida, then syphlis but after reading and finding this page it has to be this .... thanks :)

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you have my empathy!! I too have lupus, fibro, and the lupus attacked my pancreas in 04 so now I have LADA diabetes. I left the USA and moved to Scotland in 07. This country has a National Health Service that takes care of its country's citizens., I didn't have insurance and diabetes meds were around $400 a month alone. I am very blessed to have met a wonderful Scotsman and fell in love we were married in 2008. The peace and serenity of the Scottish country side, and walking in the fresh air daily keeps ahttp://swisss-misss.livejournal.com/38701.htmllot of my symptoms at bay. It's leading a stress free life that helps. please contact me on my facebook page Wendy Byrd-Meldrum or Thistle Dew Native American Speciality Shop...I would love to emotionally support you.